More HOPE on the way for ALS patients

Posted in: ,

April 06, 2022

 

Backgrounders

Facts on ALS in British Columbia
  • The ALS Society of BC was founded in 1981 by ALS patients, family members and health-care professionals to meet the physical and emotional needs of people living with ALS and their caregivers.
  • The society supports families directly and raises funds for patient services and research.
  • Approximately 400 British Columbians live with ALS.
  • ALS is a fatal neurodegenerative disease that gradually causes patients to lose the ability to move, speak, swallow and breathe.
  • In 2020, government provided $1 million to the society to support fundraising.
  • This provincial investment builds on the $2 million provided in 2021 to support the society’s PROJECT HOPE Phase 1.
  • In August 2020, the Ministry of Health began providing coverage of edaravone (Radicava) for patients living with ALS.
  • In a clinical trial, edaravone helped slow the worsening of the disease in a select patient subpopulation.